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Care that listens and engages the child and family is not
only respectful but also necessary for diagnosis, care and
patient safety. Empowering parent expertise in their child
helps children, families and staff. And continuous improvement
involves parents throughout the hospital in policy, education,
program development, implementation and evaluation, facility
design and even hiring.
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Bringing Sasha home to die was a positive outcome for Sasha
and her family after 5 months of diminishing quality of
life in hospital. As SickKids researchers discovered, only
8-12% of Canadian children needing advanced palliative care
receive the resources. We support SickKids work with the
national TRAC-PG
network through an Innovation
Fund into palliative research and an annual research
symposium.
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Sick Kids the safety of patients, staff and visitors is our
number one priority." (SickKids website) Patient safety
requires leadership, programs and continuous evaluation. Effective
communication with patients and families, within the staff
team and between medical teams is key, as is building a culture
that encourages disclosure of medical error. The fund supported
a first Inter-professional
Practise Education Week in 2007, created a hospital-wide
IPP
award and supports the annual Families As Partners In
Patient Safety symposium.
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You can see a
list of The Sasha Bella Fund's low cost, high impact,
family directed initiatives at Sickkids.
Support
the Fund online or by calling Laurel Shillingford at 416
813 7588.
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